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Spanish adaptation and validation of the child- and parent-report cystic fibrosis questionnaire-revised (CFQ-R)

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Spanish adaptation and validation of the child- and parent-report cystic fibrosis questionnaire-revised (CFQ-R)

dc.contributor.author	Blanco-Orive, Paula
dc.contributor.author	Corral, Tamara del
dc.contributor.author	Martín-Casas, Patricia
dc.contributor.author	Cebrià i Iranzo, Maria dels Àngels
dc.contributor.author	Godoy-Nieto, Cristina
dc.contributor.author	López‐de‐Uralde‐Villanueva, Ibai
dc.date.accessioned	2023-11-16T16:16:03Z
dc.date.available	2023-11-16T16:16:03Z
dc.date.issued	2023
dc.identifier.uri	https://hdl.handle.net/10550/91223
dc.description.abstract	Objective: To evaluate the psychometric properties of the Spanish versions of the child- and parent-report cystic fibrosis questionnaire-revised (CFQ-R). Methods: A Spanish adaptation of the CFQ-R was performed; 68 children with CF (6-13 years) and their parents completed the child- and parent-report CFQ-R, respectively, and the Revidierter KINDer Lebensqualitätsfragebogen (KINDL) questionnaire. The CFQ-R was completed twice, 7-10 days apart, and its psychometric properties were analyzed. Results: The internal consistency of both CFQ-R versions was adequate (child-report version, Cronbach's α >.60 for all domains except 'Treatment Burden' [α = .42] and 'Social Functioning' [α = .57]; parent-report version, α > .60 for all domains except 'Social Functioning' [α = .58]). For the child-report version, the lowest measurement error was for 'Emotional Functioning' (standard error of measurement [SEM]: 8.3%; minimal detectable change [MDC90 ]: 19.3%), and the highest was for 'Body Image' (SEM: 15%; MDC90 : 35%). For the parent-report version, the lowest measurement error was for 'Physical Functioning' (SEM: 7.1%; MDC90 : 16.5%), and the highest was for 'Weight' (SEM: 17.2%; MDC90 ; 40.1%). The correlation between the versions showed higher agreement for the domains related to observable signs ('Physical Functioning') and lower agreement for 'Emotional Functioning.' There was a significant correlation between the CFQ-R and KINDL. Conclusion: Both the child- and parent-report versions of the Spanish CFQ-R have adequate reliability and validity for clinical and research purposes. These versions can be administered before and after starting modulator therapy to assess its effect on daily functioning. The MDC90 can help identify, with a high probability, whether real changes have occurred in the quality-of-life subscales in children with CF.
dc.language.iso	eng
dc.relation.ispartof	Pediatric Pulmonology, 2023
dc.source	Blanco-Orive, Paula, del-Corral, Tamara, Martín-Casas, Patricia, Cebrià i Iranzo, Maria dels Àngels, Godoy-Nieto, Cristina, López‐de‐Uralde‐Villanueva, Ibai (2023). Spanish adaptation and validation of the child- and parent-report cystic fibrosis questionnaire-revised (CFQ-R) Pediatric Pulmonology. https://doi.org/10.1002/ppul.26671
dc.subject	infants malalties
dc.subject	pàncrees malalties
dc.subject	aparell respiratori malalties
dc.subject	enquestes
dc.title	Spanish adaptation and validation of the child- and parent-report cystic fibrosis questionnaire-revised (CFQ-R)
dc.type	journal article
dc.date.updated	2023-11-16T16:16:03Z
dc.identifier.doi	10.1002/ppul.26671
dc.identifier.idgrec	161191
dc.rights.accessRights	open access